Our Cookies, Privacy and Data Protection Policy

Our Cookies, Privacy and Data Protection Policy

Please read our policies below

Due to the new General Data Protection Regulation (GDPR), AnnaKennedyOnline won’t be able to contact you after 25th May 2018 with our latest news unless we have a ‘yes’ from you.

By filling in our contact consent form and letting us know what we can tell you about, you will continue to receive information and updates about AnnaKennedyonline after 25th May 2018.

If you don’t respond to us, you could miss out on hearing the latest news about our charity, and the impact your support has on families affected by autism across the UK.

Give us your ‘yes’ today.

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Cookies, Privacy and data protection policy

IMPORTANT: The General Data Protection Regulation (GDPR) will apply in the UK from 25 May 2018. It will replace the 1998 Data Protection Act and introduce new rules on privacy notices, as well as processing and safeguarding personal data. We will be updating this privacy policy template ahead of 25 May to reflect the new rules.

Anna Kennedy Online are committed to protecting your privacy. This policy has been written in accordance with the Data Protection Act. If you have any questions regarding our management of your personal data, or wish to lodge a complaint about how we use your personal data, please contact: Anna Kennedy Online, Brook House, 54a Cowley Mill Road, Uxbridge UB8 2FX. Telephone contact: Lisa Robins 01895 540187.

For any questions, please email  lisa.robins@annakennedyonline.com  

How do we collect information?

When you interact with us. We collect personal information from you when you submit a form, register with our website, make a donation, or otherwise provide us with personal information, whether online, on the phone or via post.

When you interact with third parties. We may also receive information about you from third parties, for example when you sign up to fundraise for Anna Kennedy Online using a third party, such as VirginGiving. Where we obtain your details from a third party, we will process the data to the same standards set out in this policy.

When you visit our website. We may gather information to help us improve your online experience. This includes learning about what pages and topics you are interested in. We also occasionally use personalisation, which changes the way some users may see the website, based on previous visits and online behaviour. We may also use the information we gather on the website to serve relevant adverts to you on third party websites like Facebook. Like most websites, we use cookies to help us do these activities, but wherever possible, we use aggregated or anonymous information that does not identify individuals. To find out more information about the cookies we use or how to opt-out of tracking, please read further details below.

What information do we collect?

The types of information collected might include: your name, date of birth, e-mail address, full postal address and telephone number. We will also collect, and securely hold, data you supply us related to a financial donation or Direct Debit mandate. We do not keep on record data related to social media usage or accounts.

How do we use this information?

We will use your personal information to provide you with the services, products or information you have requested, for administration purposes – such as processing a donation – and, if you allow it, to further our charitable aims, including contacting you about our fundraising and campaigning activities. To enable us to communicate with you effectively, we may sometimes use your data for the purposes of analysis, based on information that you have provided to our charity. We only ever share your data for these purposes with trusted, contracted suppliers. The data is shared securely and subject to safe disposal agreements. This type of activity is solely designed to help us provide you with a tailored service and to meet our charitable aims.

We will not use your personal data for any other purpose without your consent and we will contact you according to your stated preferences.  We hold your data on a secure database and in usable format only for as long as is required, and determined by the recency of your interactions with us, or for as long as we are required to do so by law (for example, we may need to keep a record of any financial transactions for a pre-determined period of time).

We do not pass on your data to any other third party without your express permission, or unless required to do so by law. We may need to share your information with our contracted service providers and associate organisations – such as fundraising services suppliers, fulfilment partners, and data, digital or IT service agents – to help us carry out our charitable activities, meet our organisational aims, and to ensure that our records are kept up-to-date.

We only use your personal information for direct marketing purposes if we have your consent (for electronic communications) and/or where we already have an existing relationship with you (for postal or telephone communications). If you no longer want to hear from us, please let us know by emailing lisa.robins@annakennedyonline.com or calling 01895 540187.

How do we protect personal information?

We use secure servers when you make a donation or purchase via our website. We also take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary.

Your consent

By providing us with your personal data, including sensitive personal data such as on your health, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement.

We may occasionally need to transfer your information to countries or jurisdictions that do not provide the same level of data protection as the UK. If we do make such a transfer, we will, if appropriate, put a contract in place to ensure your information is protected in line with UK law.

Withdrawing consent

You can change or withdraw your consent for us to hold or to use your personal data for the purposes set out above by emailing lisa.robins@annakennedyonline.com or calling 01895 540187.

We try to ensure that any changes to your personal data are enacted as soon as the request is processed, which is usually within five working days. Please note, however, that due to the way our communications are prepared this can take up to four weeks to come into effect. We hope this delay won’t cause you any inconvenience.

Please also note that withdrawal of consent will not stop us from sending you administrative communications where necessary.

Right of access

You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your personal details corrected. You can also request that we remove your records from our database or provide you with a copy of the information we hold about you. You can also ask us to stop using your data for a specific purpose.

We will aim to acknowledge receipt of all such requests within three working days and fully respond within four weeks. You can exercise any or all of these rights by emailing lisa.robins@annakennedyonline.com  or calling 01895 540187, or writing to us.

Changes to personal details

If your personal details change, please help us to keep your information up to date by notifying us.

You can do this by emailing lisa.robins@annakennedyonline.com

We reserve the right to amend this privacy statement so please do check back from time to time. If we do so, we will post notice of the change on our website and make every effort to inform you of any material changes to the policy. This policy will have been provided to you – either in full or via hyperlink – at the time your data was submitted to Anna Kennedy Online.

Links to other websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.


Some services on this site depend on cookies. This page explains in general terms what may happen if you disable them. Further information on deleting or controlling cookies is available at www.AboutCookies.org 

What happens if I disable cookies on this site?

You may not be able to access certain services or facilities and your use of our sites may be restricted.

What are ‘cookies’?

A cookie is a small text file deposited on your computer’s hard drive, that allows your choices and information to be remembered between one page and the next. Some examples of what cookies do:

allow websites to recognise that you have already have given a username and password (i.e. signed in to the site) so you don’t need to do it for every web page requested.

allow site owners to understand the patterns of behaviour of users on the site, and so to improve the site. For example, they allow us to know which areas of the site are most used by our visitors.

What cookies are not

Cookies do not allow us to “secretly” collect personal data about you. However, cookies are used to enable our website to handle the personal data that you may choose to provide to us, such as by completing an online form or registering with the website.

Our website can only access those cookies that it has created. We do not have access to the cookies from other websites, and in turn other websites do not have access to cookies used by the Anna Kennedy Online website.

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Our Cookies, Privacy and Data Protection Policy